Wednesday, May 30, 2018

Spreading Gary's Ashes

This past weekend, my daughter, grandson, myself and two dear friends went to Yosemite National Park to spread half of Gary's ashes in the place he had designated.  

It was a clear day as we attempted to go up the road to Glacier point but the traffic was so heavy the rangers were stopping cars so we went to the valley instead.  Later in the afternoon the cars cleared and we started to Sentinel Dome, our intended destination.  As we went from 4,000 to 5,000 to 8,000 feet, the air became heavier and foggier.  When we parked, the trail was only visible a few feet.  We started walking the two mile trail into denser fog.  
It has been years since I hiked so going up a wet surface was tough.

I was carrying Gary's ashes in a box in my backpack.  I found them to be heavy.  The feeling of the weight kept throwing off my balance.  I told myself to suck it up and keep going.  The weight was symbolic of the many years I "carried" him when he had Dementia.  I told myself that nothing was different.  

Then, I remembered meeting with a clairvoyant in January after he died.  She told me that I have problems asking people for help and that I need to start practicing asking people to "carry my baggage" even if I didn't need it.  Wow, I had no idea at the time that I would later refer to that event when carrying my husband's ashes to their final site.  I asked our friend Michael if he would carry the backpack and he gladly took them and carried them to the top.

I was very tired by the time we reached the top.  We found a perfect spot under a tree to spread the ashes.  It was a single trunk with two branches spreading apart. Again, the symbolism was incredible. 



We all got quiet and I said a heartfelt prayer and gave Gary back to God.  I cried as I spread the ashes into the plants below the tree.


Gary would have been pleased with the location.  Mike and I hugged and cried.  We will miss Gary greatly....especially when visiting such magical places that he loved so much.  It was a life well-lived.  

I thank God for giving him to me for 32 years.  I hope that all families who lose someone to such a horrible disease can feel the peace we felt on that mountain.  God bless you all. 



Thursday, May 10, 2018

Life has started over again.....

Life has started over again despite the setbacks of the impact of Frontotemporal Degeneration on the life of my husband, me and our family.

Gary went home to be with the Lord 4 months ago.  He is no longer suffering.  During the last 5 years I had to deal with his disease in a very real way while still working full time as a university administrator while coupling as a caregiver.  It was exhausting.  The whole scenario unfolded over a period of years and all of a sudden, I found myself overwhelmed.  I just slid into my new role of caregiver or as I call it un-wife.  I always talk about what a great marriage we had and we did....but NOT during the years of FTD.  He slipped away about 8 years ago.  

In reality, he was not there for me and was high maintenance even before his diagnosis. He was 100% dependent on me.  He could not help his behavior and I spent many years resenting him thinking that he could prevent it.  Those years of anger are my only regret. Had I acted differently, nothing would have changed in his behavior but probably many hurt feelings would have been prevented. 

If I have any advice to give families of those suffering with FTD, its be aware that they have a disease and you might need to imagine that the human form before you is not really the family member you have lived with before now.  That person in your memory is already leaving or gone.  Do not be upset with them.  Find a support group or a way to deal with your pain away from them.  Grieve them while they are alive.

Meanwhile, I have started to feel like my own person again.  I am not spending $8000 per month on memory care.  I am improving my house, dating and having fun again.  There is life after FTD.  Am I a better person for having the experience?  Yes.  Would I do it again?  No way. I am just thankful that my husband of 32 years is in a better place and no longer suffering.

At the end of this month, I will join his daughter and grandson and some dear old friends to spread his ashes over Yosemite.  He is finally free.